Amare Stover’s Journey with Neurofibromatosis Type 1 (NF1) and Fundraising Efforts in 2025 – Amare Stover, a 13-year-old boy from Decatur, Alabama, continues to face significant challenges due to his battle with neurofibromatosis type 1 (NF1), a rare genetic condition that causes tumors to grow on nerve tissue. The tumors, which have mainly affected his face, have led to serious health complications, including impairments to his vision and breathing. Despite the numerous obstacles he faces daily, Amare has shown immense resilience, inspiring those around him and attracting the support of his community.
Neurofibromatosis type 1 is a genetic disorder that results in the formation of multiple benign tumors on nerve tissues, which can occur anywhere in the body. In Amare’s case, the tumors have largely developed on his face, affecting his vision and breathing. The condition is progressive, meaning that the tumors continue to grow in size and number, creating new complications over time. While chemotherapy is sometimes used to slow the growth of tumors, surgical interventions are often required to remove or reduce tumors that impair function or cause pain.
Amare’s facial tumors have significantly impacted his quality of life. His vision is severely affected, and he can currently see only through his right eye. Additionally, his breathing has been compromised, leading to the need for constant medical supervision and care. These physical challenges are compounded by the emotional toll of social difficulties. Amare has encountered unkind remarks from peers due to his appearance, which highlights the psychological strain that can result from living with a visible difference. However, despite these adversities, Amare finds comfort in the companionship of his cousins and close friends, who provide him with emotional support and accept him without judgment.
In light of Amare’s medical needs, his mother, Kandice Stover, launched a GoFundMe campaign titled “Hope & Faith 4 Amare & Family.” The fundraiser seeks to raise funds for essential medical treatments, surgeries, and other associated costs. The response from the community has been overwhelmingly positive, with many individuals contributing and offering words of encouragement. Through social media platforms like X (formerly Twitter), Kandice has shared regular updates on Amare’s condition and the progress of the fundraiser, rallying support from a wider audience.
The GoFundMe campaign has been instrumental in securing the financial resources needed for Amare’s ongoing treatment. Kandice’s tireless advocacy for her son and her engagement with the community have played a pivotal role in raising awareness of NF1 and the challenges that families like hers face.
Amare’s journey has captured the attention of many on social media platforms, including TikTok and Facebook, where his story has sparked widespread discussions about NF1 and the importance of empathy for those with visible differences. Videos and posts featuring Amare have helped raise awareness of the condition, shedding light on the emotional and physical challenges that individuals with NF1 endure. The visibility gained through these platforms has created a supportive community, offering both practical and emotional support for Amare and his family.
Moving forward, Amare will continue to undergo medical evaluations to determine the most effective treatments for managing his tumors. The support raised through the GoFundMe campaign will play a crucial role in ensuring that he receives the necessary medical care and support to improve his quality of life. Kandice remains hopeful and determined to advocate for her son’s well-being, drawing strength from the community’s support.
Amare’s story serves as a powerful reminder of the resilience of the human spirit and the importance of empathy in the face of adversity. It also highlights the impact of collective action and community solidarity in supporting individuals living with rare and challenging conditions like NF1.